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Home: Health: Conditions and Diseases: Communication Disorders: Deafblindness

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Usher Syndrome (4)

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A-Z to Deafblindness
Understand more about deafblindness, and the people who live with it, including information about how to communicate with a deafblind person.
http://www.deafblind.com/
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Australian DeafBlind Council
Aims to represent and advocate for people with dual sensory impairment. Includes information on ADBC, on deafblindness and on training events, and provides a newsletter.
http://www.deafblind.org.au/
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BVI-Groups
A comprehensive, screen-reader accessible website, listing discussion groups for the deafblind, blind, and visually impaired community.
http://bvi-groups.tripod.com
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Croatian Association for the Deafblind Persons Dodir
About Croatian deafblind people, news, information about deafblindness and Usher syndrome, photo album. [Croatian, English]
http://www.dodir.hr
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DB Link
The National Information Clearinghouse provides information and resources.
http://www.nationaldb.org/
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DeafBlind Children's Fund
Aims to improve the lives of deafblind children through education, awareness, and advocacy. Includes information on the condition, some personal stories and details of how to donate.
http://www.deafblindchildren.org/
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Deafblind International
The world association promoting services for deafblind people.
http://www.deafblindinternational.org
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DeafBlindInfo.org
Information on dual sensory loss of all kinds. Resource listings for Minnesota, the USA, and the world. Includes specialized consumer resource guides for adults, youth, senior citizens, and families.
http://www.deafblindinfo.org/
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New England Center Deafblind Project
Working with children and young adults and providing support for their families. Serving Massachusetts, Maine, New Hampshire and Connecticut. Includes their goals, programs, resources, consultations and contact details.
http://www.necdbp.org/
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Project for New Mexico Children Who Are Deafblind
Technical assistance, training, distance education, and networking information to families, service providers, and individuals, birth through 21, who are deafblind.
http://cdd.unm.edu/deafblind/
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SEE/HEAR
Free newsletter for families and professionals on visual impairments and deafblindness. Articles on an array of topics, with archives. [English, Spanish]
http://www.tsbvi.edu/Outreach/seehear/index.htm
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Sense
The national (UK) voluntary organization working with and supporting people of all ages who are deafblind or have associated disabilities. Includes international services.
http://www.sense.org.uk/
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