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Home : Health : Conditions and Diseases : Genetic Disorders : Cystic Fibrosis

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Camps (5)

CFTR and Genetic Mutations (4)

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News and Media (2)

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Personal Pages (57)

Pharmaceuticals and Supplies (3)

Research (4)

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Testing (9)

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Featured Listing:

LINKS:

A-Z Directory of Cystic Fibrosis Resources
Biomedical directory with listings of hospitals, charities, research, and information by topic and location.
http://www.cellscience.com/CFmain.html
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

CF Advantage
The mutation that causes deadly cystic fibrosis has survived for 52,000 years - perhaps because it offers protection against diarrhea. By Josie Clausiusz
http://wsrv.clas.virginia.edu/~rjh9u/cysfib.html
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

CF Prescriber
Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease.
http://www.cfprescriber.com/
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Cindy's Friends
Information about the disease, progress being made towards a cure, and fundraising efforts in Tennessee.
http://www.cindys-friends.com
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Cyber Campus
A computer course aiming to empower and educate people with Cystic Fibrosis. From the Cystic Fibrosis Association of Ireland (CFAI).
http://www.internet-ireland.ie/horizon/
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Cystic Fibrosis Health FactSheet
Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format
http://hcd2.bupa.co.uk/fact_sheets/Mosby_factsheets/Cystic_fibrosis.html
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Cystic Fibrosis I.Q. Test
Test what you know about cystic fibrosis.
http://www.aarc.org/patient_education/iq_tests/cf/cf_form.html
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Cystic Fibrosis Links
Cystic Fibrosis Links and Information
http://www.goodgulf.com/cystic.html
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Cystic Fibrosis Management
Article detailing therapeutic options for co-management.
http://www.thorne.com/altmedrev/fulltext/cystic.html
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Cystic Fibrosis Medicine
Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family
http://www.cysticfibrosismedicine.com
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Cystic Fibrosis Resource Center
Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards.
http://www.healingwell.com/cysticfibrosis/
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Cystic Fibrosis Resource Centre
A source of information for cystic fibrosis patients, parents, doctors and other carers.
http://www.cysticfibrosis.co.uk
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Cystic Fibrosis Western Australia
Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.
http://www.cysticfibrosiswa.org
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

CysticFibrosis.com
Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.
http://cysticfibrosis.com/
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Future Force
Irish publication including articles on home IVs, nutrition, exercise and first person accounts of living, dying and transplantation.
http://www.internet-ireland.ie/horizon/mag/welcome.html
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Home Page-Harminder
Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might devolop if the theory behind this article prove true.
http://student.biology.arizona.edu/honors96/group9/Page2.html
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Irri Shark's Page
About the '65 roses' story.
http://hometown.aol.com/irrishark/page/index.htm
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

It Can't Be CF
Symptoms, misconceptions, diagnosis stories, general information, links and resources.
http://home.att.net/~cfdiagnosis/
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Jewish Genetic Diseases - Cystic Fibrosis
Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening.
http://www.mazornet.com/genetics/cystic_fibrosis.asp
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Mamas Health
Find out what Cystic Fibrosis is, the symptoms and the causes.
http://www.mamashealth.com/cfibrosis.asp
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Manual for Cystic Fibrosis Patients and their Families
From the European Thematic Network for Cystic Fibrosis. In depth information in PDF.
http://www.med.kuleuven.ac.be/cme/cf/Informationdocuments.htm
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

MyCysticFibrosis.com
Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.
http://www.mycysticfibrosis.com
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

NHLBI: Facts about Cystic Fibrosis
Information, diagnosis and treatment options.
http://www.nhlbi.nih.gov/health/public/lung/other/cf.htm
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

PulmonologyChannel
Information on cystic fibrosis.
http://www.pulmonologychannel.com/cf/
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Saving Russian Children with CF
Article about saving Russian children with CF.
http://www.globalideasbank.org/BI/BI-74.HTML
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Sixty Five Roses - Cystic Fibrosis Resource Center
Provides support, information and answers about this disease. CF news, events, links and chat rooms.
http://www.65roses.com
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

The Breathing Room
Guidance about the art of living with cystic fibrosis.
http://www.thebreathingroom.org
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

The Ortho-McNeil CF Care Website
Provides people with cystic fibrosis, family members, and the CF community with quick and easy access to education and information.
http://www.cfcare.com
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

The Spirit of Lo - Inspirational Book
Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child.
http://www.spiritoflo.com
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Yahoo! Health - Cystic Fibrosis
http://health.yahoo.com/health/dc/000107/0.html
(Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

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