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CATEGORIES:

Isaacs Syndrome (2)

Muscular Dystrophies (55)

Myopathies (10)

Myotonic Dystrophy (4)

Reflex Sympathetic Dystrophy (25)

Spinal Muscular Atrophy (15)

Stiff Person Syndrome (3)

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LINKS:

eMedicine Health - Electromyography (EMG)
Consumer health resource center providing information on the uses, benefits, and risks associated with EMG which involves testing the electrical activity of muscles.
http://www.emedicinehealth.com/articles/6590-1.asp
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Mihai Tudose
Find the story of a 4 year old boy with an uncertain diagnosis for his neuro muscular disease. It contains most of his medical files and his parents hope that the website will help them find some new treatments or news in order to improve the child' s condition.
http://mihai-tudose.netopia.ro
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

National Institute of Neurological Disorders and Stroke
Also called kinsbourne syndrome, myoclonic encephalopathy of Infants, or dancing eyes-dancing feet syndrome, an information sheet compiled by NINDS.
http://www.ninds.nih.gov/disorders/opsoclonus_myoclonus/opsoclonus_myoclonus.htm
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

NINDS: Myotonia Congenita
Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/disorders/myotoniacongenita/myotoniacongenita.htm
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

The Institute for Neuromuscular Research
The aim of the Institute for Neuromuscular research is the make the lives of children better through advances in muscle and nerve research.
http://www.inmr.com.au
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

TREAT-NMD
The TREAT-NMD Network of Excellence is a major European-wide initiative bringing together leading researchers and clinicians to improve treatment and find cures for thousands of patients with neuromuscular disorders. Find standards of care, a newsletter, and databases.
http://www.treat-nmd.eu/
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Weldon FOP Research Fund
Raises awareness and funding for the University of Pennsylvania and Dr. Fred Kaplan, the world's authority on Fibrodysplasia Ossificans Progressiva. Find info about the fund, news and events and support the fund.
http://www.weldonfop.org
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Who has a Disability?
Post-Polio Syndrome, CFS, progressive long term disabilities, helpful hints and links, information on SS Guidelines, equipment options, accessibility solutions, handicap lifestyle changes, family awareness and support.
http://www.fortunecity.com/meltingpot/grove/1105
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

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