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  • Barth Syndrome Foundation
    Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder.
    http://www.barthsyndrome.org
    (Added: Thu Jan 01 2004 Hits: 0 Rating: 0.00 Votes: 0)   Rate It   Review It
 
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