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Home: Health: Conditions and Diseases: Skin Disorders: Pseudoxanthoma Elasticum
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Family Village Links to chat rooms, web sites and information about Von Hippel Lindau's disease. http://www.familyvillage.wisc.edu/lib_vonh.htm (Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It GeneReviews: Pseudoxanthoma Elasticum Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics. http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=pxe (Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It MedicineNet: Pseudoxanthoma Elasticum Overview, genetic inheritance, symptoms and treatment. http://www.medicinenet.com/pseudoxanthoma_elasticum/article.htm (Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It National Association for Pseudoxanthoma Elasticum Nonprofit US organization dedicated to providing support services and information to those affected by pseudoxanthoma elasticum. http://www.pxenape.org/ (Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It NORD: Pseudoxanthoma Elasticum Offers a general discussion and resources for PXE. http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pseudoxanthoma%20Elasticum%20%28PXE%29 (Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It PXE International A source for pseudoxanthoma elasticum research and worldwide activities. http://pxe.org (Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It Radiology: Von Hippel Lindau Disease Genetic, clinical and imaging features from the NIH. http://www.cc.nih.gov/ccc/papers/vonhip/toc.html (Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It Rob’s Story: Living with Von Hippel Lindau Rob describes how this autosomal dominant condition affects his life. http://www.tellingstories.nhs.uk/transcript.asp?id=10 (Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It The PXE Support Group - PiXiE UK support group, helping PXE patients and research into the condition. http://www.pxe.org.uk/ (Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It Von Hippel-Lindau Disease Information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/von_hippel_lindau/von_hippel_lindau.htm (Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It Von Hippel-Lindau Family Alliance Information about the organization and the disease. Includes FAQs, newsletter, handbook, meeting schedules and support group data. (Include links to Canadian, Dutch, Japanese and European branches) [English/Spanish/Portuguese/German/Danish/Dutch] http://www.vhl.org/ (Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

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