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Home: Health: Support Groups: Conditions and Diseases: Facial Differences

CATEGORIES:

Apert Syndrome (3)

Cleft Lip and Palate (14)

Craniosynostosis (6)

Langer-Giedion Syndrome (1)

Parry-Rombergs Syndrome (3)

Stickler's Syndrome (3)

Treacher Collins Syndrome (3)

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LINKS:

AboutFace
International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
http://www.aboutfaceinternational.org/
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Acne Support Group in Cyberspace
Support group and forum for anyone with acne to visit, discuss, share treatments, provide support and move through the stressful event of having acne.
http://asgic.proboards.com/
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Beneath the Surface
Offers support and understanding to individuals with facial differences. Includes the founder's story and encourages others to share their experiences.
http://pvdw.tripod.com/~beneath_the_surface0/
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Birthmark Support Group
UK-based charitable organization provides information about birthmarks, how to get help, treatment centres, newsletters, diary of events and links to other associated support groups.
http://www.birthmarksupportgroup.org.uk/
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Changing Faces
UK charity that supports, represents and campaigns for people who have disfigurements of the face or body.
http://www.changingfaces.org.uk/
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Children's Craniofacial Association
Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
http://www.ccakids.com
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Crouzon Support Network
Provides information and support for people affected by Crouzon Syndrome and related craniofacial anomalies. Includes FAQ, newsletter, events and online support.
http://www.crouzon.org
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

FACES: The National Craniofacial Association
Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
http://www.faces-cranio.org
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Foundation for Faces of Children
Expert information for families and health care professionals about craniofacial conditions.
http://www.facesofchildren.org
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Goldenhar Family Support Group
Aims to support families throughout the UK who face the day to day challenges of supporting relatives with Goldenhar Syndrome and related problems.
http://www.goldenhar.org.uk/
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Headlines
Craniofacial support group in the UK for conditions associated with craniosynostosis. Includes details of the newsletter, events, fundraising and resources.
http://www.headlines.org.uk/
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Johns Hopkins Center for Craniofacial Development and Disorders
Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details of activities at the Center.
http://www.hopkinsmedicine.org/craniofacial/
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Let's Face It USA
A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
http://www.php.com/lets-face-it-usa
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Moebius Syndrome Foundation
Non-profit organisation that aims to provide information and support to individuals with Moebius syndrome and their families. Includes resources, news and articles and information on support groups, events and research.
http://www.moebiussyndrome.com/
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Sincere Meditations
Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.
http://www.davidroche.com/lamott.htm
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Support Works Online
Resources to find or form support groups related to facial difference. Information on medical research.
http://www.supportworks.org/cat806.htm
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

The AmeriFace Circle of Smiles
Webring community for families whose lives have been touched by cleft lip and palate and other craniofacial anomalies.
http://www.webring.com/t/The-AmeriFace-Circle-of-Smiles
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

The Craniofacial Society of Great Britain and Ireland
Information about the society, which is a multidisciplinary forum for specialists.
http://www.craniofacialsociety.org.uk/
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

The DRM WebWatcher: Facial Differences
A Disability Resources monthly guide to online resources about craniofacial differences.
http://www.disabilityresources.org/FACE.html
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

The Facial Pain Association
Aims to serve as an advocate for patients living with trigeminal neuralgia and related facial pain conditions by providing information, encouraging research and offering support.
http://www.fpa-support.org/
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

The Personal Side of Craniofacial Differences
Personal accounts of living with craniofacial conditions, and related webrings.
http://members.tripod.com/~Craniofacial/index.html
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

TRPS Support Group UK
Provides information and support to those with trichorhinophalangeal syndrome and their families. Includes information on the condition, patients’ stories and a forum.
http://trpsuk.org/
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

University of Michigan: Let's Face It
Provides information and resources for those with facial differences, those who care for them and the general public. Includes a list of conditions and information on treatment and lifestyle.
http://desica.dent.umich.edu/faceit/
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

XP Support Group
UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
http://xpsupportgroup.org.uk
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

Yayasan Senyum: The Smile Foundation
Non-profit organization supporting the delivery of health care to people with craniofacial disabilities, in particular children with cleft lip and palate in Bali, Lombok, Java and other areas of Indonesia.
http://www.senyumbali.org
(Added: Mon Apr 04 2011 Hits: 0 Rating: 0.00 Votes: 0) Rate It Review It

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